This week was full of commitments. On Monday Helen went to join Arlo in staying with their dad for a couple of weeks and the rest of us went about our day. I picked up my grocery order for the zone conference lunch tomorrow. Our presidency hosts the luncheon for the missionary zone conference a couple of times a year and I was organizing the lunch this time. In the afternoon we delivered eggs and then dropped the ice cream machine off at the Tucson Stake Center since Phil wasn't going to be able to help me with it tomorrow. We thought it would be a fun treat for the missionaries. He also helped me prep some of the food which I was grateful for. We are doing a Café Rio menu and he's my go-to for making the pico!
Tuesday I got my work all in order and finished my morning meetings and then drove over to the Stake Center to get everything set up for the luncheon. I ran into a problem in the morning when I went to make the several pounds of rice that I intended to make, my large rice pot where I usually do it all at once, had a hole in the bottom. Ugh! I had several pots going at once trying to get the rice cooked before we left. When I got there and went to set up the ice cream machine I did something wrong and it started leaking mix onto the floor, a lot of it. The Elders rolled it outside for me and stopped the leak, but man we had a mess on our hands. Otherwise the luncheon went well, we had the ice cream for dessert, a mock Café Rio salad/burrito menu, and I brought the soda syrups for a fun soda bar too. We fed about sixty missionaries and mission leaders. I'm so grateful for the wonderful women I get to work with in my calling. Here's a video of the missionaries singing for us before having their lunch.
Wednesday was super busy too. I had a lot of left over dishes from the zone conference and I'm grateful that Phil was able to help with those when he got home because I had a webinar to host at work. It was really well attended too, which was nice. In the afternoon we drove to Tucson for Arlo's follow up appointment. Two weeks ago Arlo participated in a full neuropsychological evaluation in response to some of our concerns about his academic performance and social behavior. The doctor was great and explained everything to us. She evaluated him for a very wide range of things including autism. What she found from a neurocognitive perspective is that Arlo has weakness in his attention regulation and aspects of executive functioning, particularly impulse control, thus frontal lobe dysfunction. He has clinically significant symptoms of ADHD (99% percentile) which we knew. It seems that the medication we've been using from the pediatrician is just not working effectively at all to relieve his symptoms. The pediatrician had told me that she had worked with the medications available to her and that we probably needed to consult a psychiatrist to explore more medication options. This was verified by the psychological evaluation. The executive function portion explains a lot of Arlo's melt downs and sensitivity to being embarrassed or annoyed. He has big reactions often when they're not warranted or socially acceptable. She explained it to us as his amygdala in the center of his brain will produce an emotion to a stimulus, for instance we ask him to do chores and the emotion produced is annoyance or anger, that raw emotion is then passed to the frontal lobe where the brain is supposed to process it, make sense of it, and tailor the response based on a lot of different input. For instance the feeling of annoyance at having to do chores should make its way to the frontal lobe where the brain processes the feeling and decides that if I have a melt down over this mom and dad will be mad and the chores will be harder, my siblings will be annoyed, someone might see me have a melt down and I'll be embarrassed and the brain takes all these into consideration and should decide to mute the intensity of the feeling. This would result in a "normal" response: sigh or roll your eyes, but just get it over and do your chores. Arlo's brain skips the reasoning step and the raw emotion comes out. And its a struggle for all of us. The frontal lobe dysfunction also affects his fine motor skills which account for extreme difficulty in tying his shoes, buttoning shirts, writing, etc. All things I've criticized him for: "You are almost twelve years old, why can't you tie your own shoes!?" Yeah, a lot of this portion of the appointment brought about feelings of guilt and shame in me as his mother.
His academic skills were also evaluated and he showed areas of superior ability, but it was discovered that he has dyslexia and dysgraphia which are highly related to the other difficulties previously mentioned. I guess 50% of students with ADHD also have a learning disability; at least 20% have dyslexia and 30-40% have dysgraphia. I had no idea, but it makes so much sense. He's brilliant in math and science, his abstract verbal reasoning, visual spatial abilities, and visual memory were in the superior range and his processing was atypically fast, but his spelling was in the 1% and his writing was labored, slow, and full of spelling and grammatical errors not to mentioned flipped letters and extreme pressure on his pencil. She said that some of his behaviors, like the straw twirling, and self isolating overlap with behaviors you see in autistic children, but he does not have an autism spectrum disorder. I was relieved to know that we could get him some relief with changes to his ADHD medication along with reading and writing tutoring and occupational therapy. She also said we needed to work with the school to get him an IEP and 504 plan.
So lots of things to do, but also I feel very positive about it all. I have information now. I can adjust my parenting strategies as I continue to research the best methods for helping Arlo. We can get him the medication he needs, the tutoring and the therapy that will help him to be the best version of himself and reach his full potential. I am full of hope for Arlo's future. That being said, this is all new territory.
In the evening I had a presidency meeting and Phil took Jude over to Uncle Kirby and Aunt Brook's house. We're going on vacation to southern California later this month and they're going to watch Jude for us...because I can imagine trying to take Jude to Disneyland at his age. They wanted to do a trial run, have him spend the night and make sure he understood that we'd come back for him. They all had dinner and Jude loved playing in the pool. When it came time for Phil to leave I hear he didn't put up too much of a fight. I think he did well and was happy to see Felicity Thursday morning when she came to get him. Yay!
Phil worked over time on Thursday and in the evening I helped teach a Stake training for Temple and Family History Leaders. Phil worked on Friday and it was my working Friday so I didn't get things done until much later in the afternoon. I did our grocery shopping and our neighbor's grocery shopping with Felicity's help and then she also helped me prepare a meal for a family in our ward. I appreciated all of Felicity's help this week as she was the only big kid home.
Saturday morning my presidency went to the temple together and enjoyed our time there. We had lunch when we were done and it was a nice way to wrap up a stressful week full of "have to" items. I spent the rest of the day trying to catch up on laundry and chores and I may have also taken a nap since Jude is so fond of being up at 5:30AM these days. In the evening we went to Texas Roadhouse to celebrate Phil's 45th birthday. We are so lucky to have such an incredible human in our lives and hope he has at least 45 more birthdays! Phil had to work on Sunday and Felicity and Jude and I enjoyed an obligation-free Sabbath. I'm hoping next week will be far less hectic. I don't have as many things on my calendar so I anticipate that its going to be a little more calm...wish me luck!



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